It should go without saying that with great love comes great loss. As fiercely one can love another, then loss happens, that is how acute this loss will be. I made this post public in the hope that it will be shared and thus, help others. I’m writing this post with sincere honesty. If my words help to validate another person’s loss, then my pain in writing this verbiage was worth it.
If a person loses a child, a parent, a sibling, and so on, the level of your love will equal the pain of your loss. The King of Loss is Child Loss.
I’ve lost many loved ones, many felt more acutely and for longer than others. I’ve lost many, but my first horrible and acute loss was the death of my baby brother after heart surgery to repair the heart issues that came with Down Syndrome. An innocent one, not quite age three years. A baby I changed diapers, gave small bits of nutrition and heart medicine (digitalis), and that meant careful measuring of dose, or he could die, and I was the one honored with baking his last earthly birthday cake. It took a lot of time to deal with this loss.
Sadly, I gave birth to my oldest son, knowing he was already gone to heaven, as he’d strangled on his umbilical cord inside me, yet still had to deliver him. It did not go well at all. At that point in time, Shane dying ripped me apart. It was too much. Dealing mechanisms failed. I chose a 30 day stay in a psych unit coming to grips with his death. I still feel his loss to this day, but not acutely, not all consuming. With the great love I had for him, the loss was too much. I wasn’t weak. My little brother had died one year prior, my stepdad only a few months earlier.
The following year, I gave birth to my rainbow baby, Gene, and I was scared as he was born blue, after 30 plus hours of intense labor. It came down to one last push from me and the doctor using suction cups to bring him into the world. I thank the Lord every day for this blessing. That was December 1983. Something bright and good came into my world.
Come April 1985, my third son was born. I was in bliss. We were a family of four. I won’t delve into the relationship I had at the time with my boy’s father. Sammy was a happy and well-fed baby, just like his brother, Gene. He started getting sick a lot in September 1989. Multiple sinus infections, ear infections, and he even picked up mononucleosis! His mono spot was positive, and the doctors were amazed. Source: Most likely grocery shopping cart. Reason: Lowered immune system due to treating his multiple infections.
He remained sick and had head x-rays and CT scans, sadly misread by a radiologist in Salina. His pediatrician never looked at the scans. The Ellsworth doctors never looked at the scans. During this time, Sam had a “bad head hurt” that he didn’t tell me about until after diagnosis.
Mono comes from the Epstein Barr Virus. If a person gets this virus, they can get nasopharyngeal cancer. That was the cause of my little boy developing his nasopharyngeal cancer. When finally diagnosed, it had already spread to his brain and both lungs. He endured a living h*** for eight months at KU MED, after diagnosis.
His manner of death was traumatizing and with horrendous pain at only age five years. My loss was so palpable, I was not a pleasant person. He died in October 1990.
I was extremely angry at God. Why did my son suffer? I still attended church; I was picky on how things would be for my middle son when he was young. I was ANGRY at God. With GREAT love comes GREAT loss. Acute loss that is still felt at times, and right now as I write this piece. Many years, I’d go up to confession and discuss my anger at God. Bishop Fitzsimmons helped me the most. I no longer have anger at God, and I haven’t had anger at Him for a very long time. Not since 1993.
Why did I write all the above? There are people in the Ellsworth community and county, and around the world who are going through huge losses. It’s an unquantifiable loss for each person. It’s normal to go back and forth after a huge loss. Dr. Elizabeth Kubler-Ross became my friend, and she helped me the most with phone calls and emails after Sammy died. Our connection was special.
People are hurting with grief. Sometimes, when we are hurt, our hurt and anger gets misplaced upon another person. I see that clearly happening here, thus, it happens around the world. My post is to help those who are hurt. Your pain is validated. Only you know your pain. Your pain is real. Anyone can talk with me. I validate what you feel. I get it. Email me, text me, drop a note in messenger, etcetera. I will help you anyway I can.
I’m NOT a doctor and doctors are the people to see if your situational depression doesn’t get better. I’m a sounding board and I will cry with you. I pray my message is clear.
Lord,
Lift the hearts of the brokenhearted in Your Glorious Name.
Amen.